Here in AZ the gov vocational rehab is so understaffed just to be onboarded I received an appointment almost a year after I called. Now with corona virus cases will surely have been pushed back even further possibly for another year. It's so frustrating to work with.

Even just getting diagnosed I had to fight my insurance company who said that a DNA test was not necessary (it's a genetic condition???).

All of these things are the reason I'm trying to get ahead of all this. This entire thread has given me a lot of hope, thank you.